Do you know anyone with cancer, a rare disorder, or a chronic illness like diabetes or arthritis?

It is highly likely they are either missing out on medicines they need or are not receiving the best medicines they need to treat their disease.

That’s because successive Governments have continued to severely underfund Pharmac, New Zealand’s medicine buying agency. Pharmac is now one of the most poorly funded medicine buying agencies in the OECD.

There are over 100 medicines on Pharmac’s waiting list. This list does not include medicines that are being very slowly processed by Pharmac. Pharmac is notoriously slow to fund a medicine. One medicine has been on Pharmac’s waiting list for over 17 years.

This must stop.

We need your help. They need your help. Future generations need your help.

Please sign and share our petition to double Pharmac’s budget and reform the agency.

Julie Robinson (Ngāti Porou, Rongowhakaata and Ngāti Kahungunu) of Gisborne, was a non-smoker, and was diagnosed with advanced lung cancer.

Julie needed Keytruda, a drug that could have significantly prolonged her life and the lives of 28 kiwis who die each week from lung cancer.

While Keytruda is funded in 45 countries it is not funded by Pharmac in New Zealand to treat lung cancer.

Julie passed away in September 2019, aged 42.

Claudine Johnstone of Dunedin was diagnosed with advanced breast cancer.

She and her husband, Stu, had to sell the family home and relocate to Singleton, Australia, to access the drug Kadcyla.

Claudine’s oncologist in Australia shook her head in disbelief at the number of cancer drugs that are unfunded in New Zealand.

Claudine died in Australia in August 2020, aged 46.

Stephen Dunne of Tauranga was diagnosed with advanced bowel cancer and needed the drug, Erbitux, funded. He spent his life savings in order to live for an additional three and a half years.

As it is funded in over 50 countries, Stephen presented a petition to the Health Select Committee in November 2019, to have Erbitux funded.

Stephen passed away in October 2020, aged 80, waiting to be heard by the Health Select Committee.

Tama Hubbard (Waikato-Tainui) is four years old. He is one of 34 children and a similar number of adults who suffer from a degenerative rare disorder called Spinal Muscular Atrophy (SMA).

He needs the medicine, Spinraza, funded. It is currently funded in over 50 countries including Latvia, Slovakia and Serbia but not in New Zealand.

Three New Zealand children have died in past 12 months from SMA.

Ruby McGill of Wellington is one of 26,000 Type 1 diabetics in New Zealand and is need of a Continuous Glucose Meter (CGM).

CGM’s allow for diabetics to maintain control of their diabetes, altering the user if their glucose levels are too high or too low.

Having CGM’s funded would allow a greater quality of life for Type 1 diabetics and would also result in fewer hospitalisations.

Bella Powell of Auckland, is 17 years old and has Cystic Fibrosis.

At age 15, she was told she only had two years to live if her disease went untreated.

Last year, Bella was fortunate enough to access Trikafta and it started working within hours.

The only chance Bella, along with other Cystic Fibrosis patients have, of getting the medicine funded, is if Pharmac receives a significant funding increase.

Please help us get the Government to act Will you sign the petition?

For all enquiries please contact:
Malcolm Mulholland
[email protected]
022 097 5899
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